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My daughter has a new allergy and you might be surprised at this one

Posted By Alison On May 21, 2012 @ In Food Allergies,Peanuts/Nuts Allergy | 44 Comments

About a month ago, I gave my daughter a new soup to try: Amy’s Lentil Soup. It is delicious with quality ingredients and she ate it up one day after school, before gymnastics. I added cooked rice to it and it made a great powerhouse snack! The next week I made it for her dinner, again with rice. I think she ate two bowls, she liked it so much. Then it all went downhill…

Within a minute of finishing the soup, her voice changed and she began to have trouble breathing. She was having an asthmatic reaction. No hives, no redness, but she instantly didn’t feel well and wanted to go to bed (it was still early). I immediately gave her Benadryl and as we headed to her bedroom, she said, “Mom, bring my emergency kit.”

Because I grew up with asthma, I recognized the asthmatic breathing she was experiencing, and got an inhaler that we had been prescribed by our pediatrician but had never used. I thought to myself, “If this doesn’t work, I’ll use the Epi.” And I was racking my brain as to why she was having this reaction, though my instinct told me it was lentils since everything else in the meal was foods she had had many times before. I also knew that lentils are a legume and since she is allergic to peanuts which are also legumes, I thought there could be a connection.

After a few puffs on the inhaler, her breathing began to normalize, but slowly. Eventually her breathing was clear as she fell to sleep, exhausted by what her body had just been through. Now I know that many doctors and knowledgeable food allergy people would have advised using the Epi Pen right away, but there’s still part of me that is scared to use it, and I felt that I should try the other medications first. Luckily they worked.

Once she was asleep, I headed to the computer for answers. Sure enough I found myself in peanut allergy forums where moms were discussing the other legumes that their children were allergic to. It seemed that lentils and chickpeas were the most common legumes that peanut-allergic kids reacted to. Several of the forum members quoted the statistic of 20% of peanut allergic children being allergic to lentils or other legumes (but my allergist thinks this statistic is too high). I had never considered that lentils could be a problem, but here I was now realizing that she was probably allergic to them. I lost it. I mean I really lost it. I cried — hard. My husband was out of town and I felt alone with this knowledge and I couldn’t get a handle on my emotions. Luckily I was able to call another mom with allergic kids who could understand what I was feeling. She talked me down, but mostly just listened and was there for me on the other end of the line.

The next day I made an appointment with the allergist to test for the lentil allergy. We couldn’t get in until weeks later and I was told to avoid lentils until we could do the testing. Last Friday was the day. That morning, I called Amy’s Kitchen. I figured I should know every ingredient in that soup before we went in, and “spices” was listed as the last ingredient. Here is where I give a big plug for Amy’s: I have always loved this company and now I like it even more. The customer service person (key word here: person) understood my needs and immediately escalated my call. Though companies don’t always like to share their ingredients, because it’s like giving away their recipe, she did tell me what the “spices” in the soup were so that I could have that information to best take care of my child.

That afternoon I took my daughter to the allergist. I brought the lentil soup in one container and straight lentils that I had cooked in another container. They literally put the suspected allergens into the skin on the back to see if there is a reaction. The doctor used a commercial lentil solution for testing also. We tested a few other things while we were there too.

The results: she reacted strongly to both the lentil soup and the straight lentils. Those are the two top left wheals on her back in the picture. She did not react to the commercial lentil extract, leading both the allergist and me to believe that fresh lentils are certainly more potent and allergenic than their extract. The third wheal you see in the picture is the positive control — they purposely give histamine to make sure the person will react to something if allergic (if someone has taken antihistamines, it can affect the test). The other pricks were to rule out other ingredients in the soup (celery, for example) and retesting some other allergens.

My daughter was a trooper through the whole thing, but in the car on the way home it hit her that there is yet another food she is not allowed to have and that she has to watch out for. It breaks my heart. I hope they find a cure for food allergies in her lifetime!

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