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Leg cramps

Posted on May 23rd, 2008 by Alison Read 13 Comments - Add Your Own »

legcramp.jpgYears ago, when a boyfriend of mine spent the night at my apartment for the first time (nothing happened, I swear!), he awoke to someone screaming. He jumped out of the bed in full combat mode, ready to attack whatever hideous creature was making those awful sounds. That hideous creature, of course, was me. “Help me! Help me!” I was shouting. “My legs! My legs!” Both of my calves were in painful cramps. If you have ever had one leg cramp, you know that you can pull yourself up and stretch it out. But double leg cramps means you are basically paralyzed, unable to maneuver yourself anywhere.

I gotta hand it to that boyfriend, he came through in crisis — he immediately grabbed my feet and pushed my toes toward me, slowly relieving the cramps. Surprisingly, he stuck around and got used to the middle-of-the-night cramp drill and even married me eventually, despite all my weird ailments!

The leg cramps were worse at night, but also occurred during the day. They came on stronger if I was dehydrated or if I drank beer. Sitting for a long time in one position could bring it on, such as the time I was on airplane returning from a weekend volleyball tournament, where days were spent playing in the hot sun and nights were spent in the bars. The plane had just landed, and as everybody rose to get ready to exit, both my quad muscles in my legs cramped. It was so painful that I involuntarily began shouting profanities (namely, the f-word). I looked up and saw a sea of faces looking down at me. “Leg cramps” I said in a little apologetic voice to the crowd. I looked over at my friend sitting next to me for support but she could only hide her own face and her giggles.

I not only had leg cramps, but I also got cramps in my hands, feet and a few times the muscle between my chin and neck cramped after I yawned (I didn’t even know I had a muscle there until it popped out!)

So what was causing these cramps? Not potassium deficiency, as everyone liked to believe. “Eat more bananas!” people would say. So I ate more bananas. I even drank tonic water because it contains quinine which was used to treat nocturnal leg cramps (now the FDA warns against using it). I had my potassium levels checked and they were normal.

It wasn’t until I had to change to a gluten-free diet after being diagnosed with celiac disease that the leg cramps went away. What a relief! Now I think that the cramps may have been related to my iron deficient anemia (caused by celiac), but no one is sure. All I know is that I don’t miss them one bit (and neither does my husband)!

Comments

  1. Leg cramps can also be caused by magnesium and/or calcium deficiency. Adequate vitamin D is also needed as vitamin D has something to do with the regulation of calcium and magnesium.

    Everyone needs their vitamin D checked, 25(OH)D, to be sure it is not low or suboptimal.

  2. Thanks Anne,
    I will have to check my old blood tests and see if I was tested for these deficiencies when they were trying to figure out what was wrong with me!
    Alison

  3. I have experienced the exact … same … thing. I’ve not had celiac testing but did test positive for corn, soy and wheat allergies. Since changing my diet, cramps have disappeared. Prior to this, they were a routine part of my crippling, painful experience, particularly if I was dehydrated. I found tums (calcium carbonate) to be a cure then, but now there’s no need for them. Besides, tums has corn syrup in it ……

  4. The only test of the ones mentioned by Anne that I could find of mine was calcium, and while it was in the normal range, it was the lowest end of normal. Later tests (after gf diet) show my calcium levels to be higher.

  5. Fascinating…. my own leg cramps recently got so bad I could no longer stretch my legs out in bed at all (or turn them a certain way, or sit in certain positions) without them cramping. I forgot what it was like to move my feet without cramping. Sometimes my feet would go into full curling spasms. I was diagnosed gluten intolerant about 6 years ago, with several other food allergies and sensitivities, and have been strictly avoiding gluten and the other things all this time. Still, the cramps have still been there, and got worse after a surgery a few years ago. My doctor dismissively mentioned, after a blood test last year, that my postassium level “might be a little low.” He suggested more bananas. I demanded a strong supplement. It worked, like a miracle (heart palpitations got better, too). When I forget to take it the cramps come back. I’ve since discovered that my level had been “on the low side” for years, but no doctor had thought it low enough to be worth mentioning. The cramps were disabling and made my life miserable, yet the postassium level hadn’t been so low on lab results that it raised any alarm. As a general rule for everyone, especially people in our sort of situation, it’s always worth double checking lab work. And question everything and pursue anything that doesn’t seem right.

  6. I agree about people checking their own lab work Ellen, and I think that you have a good point, that there is that “normal” level and if it isn’t low ENOUGH, then no one is concerned.

    Looking back at my lab results, there were several tests that I was in the normal range for, but after going gluten-free, those levels all rose significantly — meaning that I was not absorbing them completely before.

    After being anemic for so long, I actually tested out of the normal range for iron 3 months after changing my diet, but this time it was because my iron was too HIGH! My doctor couldn’t believe it!

  7. I wonder if there can be any connection made between gluten (or other food allergies) and restless leg syndrome?

  8. Andrea,
    Yes, restless leg syndrome has been connected to gluten. Here is a discussion about it disappearing after going gluten-free:
    restless leg syndrome.
    Also, my friend’s husband had restless leg syndrome until changing his diet. You can read about that too:
    Lan-Ping’s Story

  9. Well, well, I guess this was another problem I also had before I found out I was a celiac chick.

    Nights upon nights of leg cramps and also taking calcium, magnesium and postassium with no results.

    I was diagnosed as being celiac about 1 year ago and I don’t recall having any leg cramps this past year once I started changing my diet to gluten-free.

  10. I was diagnosed with Celiac’s Disease 29 yrs ago after I had already hit malabsorption. I follow my diet to the letter but have had problems with leg cramps off and on for the past 5 or 6 years. Took quinine, tonic water, mirapex, etc, but still get the screaming night time leg cramps. Then they stopped. Months later, I decided to get back on my vitamin regimen including Move Free (MSm and Chondroitin). Soon after starting, the cramps returned. I need the joint lube but those cramps seem to be worse with the Move Free. Wish I had an answer.

  11. I’ve been searching the internet for reasons why I might have terrible leg cramps. I get them in my legs and feet often, can’t even give my baby a bath comfortably without cramping and shifting my body around. I also get them in my neck and even in my stomach. I used to do long distance racing like marathons and Ironman distance triathlon. I thought that caused it but now I’ve been off for a year and a half and my cramps are still bad. I take all the supplements, potassium, Mag, Calcium, Vitamin D and etc. (P.S. to the poster above I found I actually got worse if I took too much potassium) I’m very frustrated and this seems to be the closest thing I’ve seen to all of my symptoms. I’m going to ask my doctor about testing. I should has for a gluten test or a test for celiac disease?

  12. My wife and I went on a gluten free diet about 3 weeks ago. We are both feeling wonderful, except for the leg cramps we are both having, usually at night and early morning.
    Is this a common occurrence, and will it take time to diminish and ultimately disappear? after our system gets used to the new food regimen?
    Would love to hear any feed back regarding the above.

    Marvin

  13. Hi Marvin,
    You started having leg cramps after starting the gluten-free diet, but didn’t have them before?

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